So, do I fight on with a JPouch or go to a permanent Ileostomy!
No contest I hear many of you shout! Keep the JPouch.... but why?
I have had my JPouch for just under 2 years now, I have full control, no leakage, no night accidents and can eat and drink reasonably well. So why change?
Well, since creation and connection in a single operation, almost 2 years ago, I still need suppositories every night, Mesalazine and Prednisolone, if I miss either for more than a day, chronic cuffitis, that I have suffered in one form or another (proctitis) for over 4 years, will rear its ugly head!
So, what does that mean? For me, it brings pain, pressure, no sleep, extreme stabbing and burning feeling most of the time in my bottom. It’s painful to sit, sleep and pass poop, something that happens up to 20+ times a day at my peak. This also brings butt burn, sores and anal fissures which in turn, sting, burn, itch and generally drive me insane!
So that’s that part, I live on, having to pop 2 rather large gel-based pills up my bottom EVERY NIGHT, on my birthday, valentine’s day, on holiday, when I’m tipsy, when I’m about to go to bed with my partner and be intimate! All must pause for the application of the rubber glove, Vaseline and butt bombs!
I can live with this, I have for so long now it comes as regular as brushing my teeth, but what about the side effects of long-term use... well little has been said on that to me, but I know steroids thin the skin and that can be doing no good.
I am petrified of getting fistulas especially a rectovaginal fistula* due to the location of the continued steroid use, so far, I have been lucky enough to avoid.
* A fistula is an abnormal connection between two surfaces in the body, like a tunnel between two underground stations. In this case, the tunnel runs between the anus (or rectum) and the vagina. This tunnel allows the content of the bowel such as wind, mucus, bacteria or even stool to pass from the rectum into the vagina.