Firstly, I wish to reassure my position is rare and most people go on to live an amazing disease-free life after surgery! They are rarely the ones in support rooms seeking help and comfort or support, so whilst this is a sad situation, it has not all be doom and gloom! I’m alive and I have my surgeries to thank for that!
So where to start... I have had my JPouch for 23 months and before that had a temporary Ileostomy Stoma for 16 months. This is where my surgical journey started after several severe flares of what was thought to be Crohns and is now diagnosed as Indeterminate Colitis, historically it was more Proctitis, I had had numerous treatments from steroids to biologics and nothing was working. The only option was to remove my full colon and secure the remaining detached rectum to my stomach wall to preserve it for later options.